For those of you who already know Alesia is pretty clear that her face can express almost anything and you know that she does not really need to talk to get what she wants, of course some of you know that she is very smart and she have a really, really, REALLY strong will. I think this made possible for her to learn how to read and recently learned how to write. This is a huge step ahead and with using this type of communication will help her evolve more rapidly. Using a very sensitive button and a small and simple computer program that scans a list of letters/symbols she can pick the letters from a word/phrase one by one, and she is doing it very well as you can see in the clip below.
She is assisted by her Momy and her teacher Sorina Ilie that worked with her last year and also read to her probably more than 1001 stories :).
Alesia using her little button to write words
Is the last day of preschool and she also received a graduation diploma.
Alesia and teacher Sorina
Alesia happy with her diploma! BRAVOOO!
Bravo Alesia we are really proud of you, our brave girl.
Mom and Dad
M(om) & D(ad) are trained and ready for the race just like pro athelts
Music playlist set-up
T Shirts are ready:
M&D will run their first semi-marathon and they will run to tell the world that my life is just like marathon race and that I am "running" and enjoy each and every meter of it. I belive that this way I can give power to "run" this race of life to people that think they have lost it.
We will run to support the cause of SMA Care Association that was created to help children affected by Spinal Muscular Atrophy
We will also run to support HOSPICE cause because I belive they are making a wonderful job restoring lifes devastaded by a terminal disease:
13500 lifes already restored. Please support HOSPICE to continue this!
Me and my mommy are helping Spring to finish its preparations. How? we are making flowers...as many and as beautiful we can and on first day of March spring will use this flowers to bring happiness and strength and hope. Look what we have done:
Do you like it? Am I a real spring thinker now :) ?
...I am Ana Alesia, and I've showed up in this world in a sunny day of September 2006. I do not understand yet much about this world, and for now I only know that I have people around me that loves me so much. Their happiness should not be shadowed by anything, however there is a big and bad cloud in the sky right now that doesn't let their (and mine) happiness to be complete...The cloud is the Spinal Muscular Atrophy diagnostic that was put on me. This is a death sentence for me, I am locked in a body that is dying...and the doctors said that it will die before I reach the second birthday. I am now fighting to defeat the disease and I need all the help in the world for this. Please think about me, pray for me: I WANT TO LIVE!!!