Besides reading and commenting story books with mommy hours after hours after hours until my mommy says "no more! let's do something else", watching movies one after another after another, drawing again and again and again I like solving puzzles. Check out the videos below... well, it might be a puzzle for you too because mommy is talking romanian.
Solving animal puzzle with mommy
Reading stories with mommy
I am telling you a secret: I love my mommy, I can not stand a second without her, she makes me happy.
It is the 18th day since I started a new diet and things are going very well now and I can actually say that this came as a rescue for me because no food seemed to work for me anymore and my weight reached the minimum 6.2Kg.
How it was before:
After each meal the stomach was becoming each time like a balloon ready to explode and someone had to take back some of the food from the stomach because otherwise if a gastric reflux happened my life was in serious danger (yes....because I can not swallow and so the food could go on the wrong way)
I was losing weight and there seemed that nothing can be done about it
I became weaker and weaker each day
I stopped to ask anymore for food
How it is now:
No more bloating
I am definitely stronger
I started to gain some weight (6.8kg)
My face is happy again and is not in pain because my tummy is not hurting me anymore.
What have we done?
The new diet, called Amino Acid diet or AA diet improved the quality of life for many children that are fighting with this horrible disease - SMA, and it definitely improved mine too in such a short period. If we could only knew about it earlier, if we could only understand how to apply it earlier, if we could only afford to buy the Elemental Amino Acid based formula earlier...well I guess it is better late than "too late".
This helped and inspired us:
There are articles and testimonials from wonderful parents and doctors that worked to build this diet and that are applying it with good results, the information is out there shared for everyone and it can be a life saver for an SMA child. We where very much inspired and we are thankful for this to:
Lizzy's Nina for her advices on how to proceed with the diet
...I am Ana Alesia, and I've showed up in this world in a sunny day of September 2006. I do not understand yet much about this world, and for now I only know that I have people around me that loves me so much. Their happiness should not be shadowed by anything, however there is a big and bad cloud in the sky right now that doesn't let their (and mine) happiness to be complete...The cloud is the Spinal Muscular Atrophy diagnostic that was put on me. This is a death sentence for me, I am locked in a body that is dying...and the doctors said that it will die before I reach the second birthday. I am now fighting to defeat the disease and I need all the help in the world for this. Please think about me, pray for me: I WANT TO LIVE!!!