Saturday, October 25, 2008

First step to mobility and a + for my comfort

With the help from people with good heart I have now a new stroller and a laying system special designed for special children that have to fight this unfair war with a cruel and sadistic disease. The mattress seems to be very good for me and so...I fall a sleep in minutes after m&d put me on top of it....and I slept deep for several hours without even ask to be turn over.
The stroller will give me some mobility to move inside the house and hopefully if I will gain more power I will be able to go outside someday. For now I am happy that I can move few meters from my bed.

THANK YOU for all the good people that helped my parents to buy this equipment with money, advices and logistic (it is not available in my country)


MJ said...

You are very beautiful! My name is MJ Purk. My real name is Margaret. I am 20 years old and am a junior in college. I have SMA type 1+, meaning I don't fit in any category. I got your website address from SMASpace, where your father is a member.
I have an organization that sends blankets to kids with SMA and would love to send one to you. My organization is called B4SMA. My caregiver and several others make the blankets. If you would like more information, check out
Should you decide that you would like to receive a blanket, please e-mail me at with your post address. All we ask in return is a picture of you with your blanket covering you.
Also, if I can help answer any questions you may have regarding SMA, please don't hesitate to email me at any time. I am not afraid to answer any questions you might have. Big hugs to you and your family.

Kimberley said...

I'm so glad that you got such a wonderful stroller Alesia. Now you can go cruising! You're a beautiful little girl. All our best to you and your family.
Kimberley and Kaitlyn