Monday, October 27, 2008

CoughAssist as Royal Gift.

I added in my arsenal a new "weapon" that will help me to fight the disease. It is called CoughAssist and it proved to be a useful machine for other children that are fighting with SMA. CoughAssist clears secretions by gradually applying a positive pressure to the airway, then rapidly shifting to negative pressure. The rapid shift in pressure produces a high expiratory flow, simulating a natural cough.

Because of my muscle weakness I can not cough efficiently. It will surely help me a lot and hopefully keep me away from being hospitalized. I should have it earlier but my parents did not afford to buy it and so I received today as gift from a man with good heart...from a real Prince.

Doctor Cristian Tanase from Grigore Alexandrescu hospital came today and thought me how to use the Cough Assist...well actually trained my parents how to use it! I was scared that it will hearth me but it did not. I did not felt any pain and obviously I was able to clear more efficiently the airway paths.

Although it is so useful and used equipment, it is a pretty new device in my country (I think is the first). Maybe it will be useful in our hospitals as well! Maybe it would be good it the expenses for it would be supported by medical insurance for patient like me!

2 comments:

Kimberley said...

Fantastic news! The Cough-Assist has been a life saver, literally, for our Kaitlyn. The cough-assist should be covered under medical insurance! For our SMA children it is just as crucial for their improved quality of life as the ventilators that help them breathe. You are doing such a wonderful thing for all the other SMA children in your country. Hopefully your doctors and hospital will be able to learn from you. Give your girl a squeeze for us. Kimberley and Kaitlyn.

Tina MacIntyre said...

Wonderful to meet you and your beautiful family through the Internet. I saw you on SMASpace. We live in Canada and have an almost-nine-year old boy with SMA Super I as well as a five-year-old girl who is not affected by SMA.

Alesia is a beauty and surely blessed with such wonderful parents. I will keep you all in my thoughts and prayers and check-in periodically.