Wow....There are 10 days already since home and mommy & daddy are very happy that they where able to make it so far with my care giving. My room is already filled with toys, all the stories new and old have been read 1001 times and most of all I am happy, I enjoy every second and I'm starting to learn new things. I'm so afraid for anything to change, I hope not and if it does, to change in good for me.
Yesterday we made a short movie that you have to see it! My mommy teaches me how to take care of my skin and you will probably see that there are some minor improved with the strength of my arms and legs.
...I am Ana Alesia, and I've showed up in this world in a sunny day of September 2006. I do not understand yet much about this world, and for now I only know that I have people around me that loves me so much. Their happiness should not be shadowed by anything, however there is a big and bad cloud in the sky right now that doesn't let their (and mine) happiness to be complete...The cloud is the Spinal Muscular Atrophy diagnostic that was put on me. This is a death sentence for me, I am locked in a body that is dying...and the doctors said that it will die before I reach the second birthday. I am now fighting to defeat the disease and I need all the help in the world for this. Please think about me, pray for me: I WANT TO LIVE!!!