After more than 1 month of silence I can talk again. What a joy today.....words are coming out again and slowly I'm beginning to express myself not only with my eyes but also using my voice. It is still very hard because I need to do an extra effort to make the air escape the trach and pass through the vocal cords, and there are other obstacles as well, but as you know I am not giving up. I hope some day I will be able to read stories to other children as my mommy does every day.
Check my video below and see that I can kiss my mommy, I can show her where is the door, where is the window ...and I can say: "Tata"
...I am Ana Alesia, and I've showed up in this world in a sunny day of September 2006. I do not understand yet much about this world, and for now I only know that I have people around me that loves me so much. Their happiness should not be shadowed by anything, however there is a big and bad cloud in the sky right now that doesn't let their (and mine) happiness to be complete...The cloud is the Spinal Muscular Atrophy diagnostic that was put on me. This is a death sentence for me, I am locked in a body that is dying...and the doctors said that it will die before I reach the second birthday. I am now fighting to defeat the disease and I need all the help in the world for this. Please think about me, pray for me: I WANT TO LIVE!!!