Thursday, June 26, 2014

Last day of school...let the vacation begin

Alesia graduated first year of school. Together with teacher Sorina  studied mathematics, read, wrote and discussed about stories, created beautiful crafts and enjoyed every day of school. In fact I am sure Alesia would like the school to continue during summer but for now vacation is good too.

I have got a first grade graduation diploma and a story book

I am a happy teeth-less princess that is just starting the vacation

see you in 2nd grade!

Thank you Sorina for your hard work this year, Alesia is looking forward to start the school again.

Sunday, March 2, 2014

The spring is here!

My mommy and myself (with the power of my mind) worked and made a LOT of flowers. The plan is that we will give this flowers to all our friends and seeing all the flowers,  winter will understand that is time to go away

Happy spring!

Sunday, August 11, 2013

August is SMA awareness month

We and our SMA friends from all over the world lit candles today (10 Aug) and sent a message to SMA: that its time is close to end because a cure will be found soon!

 End SMA!



Tuesday, June 18, 2013

Preschool Graduation and A Big Step Ahead

For those of you who already know Alesia is pretty clear that her face can express almost anything and you know that she does not really need to talk to get what she wants, of course some of you know that she is very smart and she have a really, really, REALLY strong will. I think this made possible for her to learn how to read and recently learned how to write.  This is a huge step ahead and with using this type of communication will help her evolve more rapidly.  Using a very sensitive button and a small and simple computer program that scans a list of letters/symbols she can pick the letters from a word/phrase one by one, and she is doing it very well as you can see in the clip below.

She is assisted by her Momy  and her teacher Sorina Ilie that worked with her last year and also read to her probably more than 1001 stories :).

Alesia using her little button to write words

Is the last day of preschool and she also received a graduation diploma.

Alesia and teacher Sorina
Alesia happy with her diploma! BRAVOOO!

Bravo Alesia we are really proud of you, our brave girl.
Mom and Dad

Monday, May 20, 2013

Our first semimarathon - We did it!

Yes, We did it! Mom and Dad run their first semimarathon in 2Hours and 28 minutes:

Be prepared for 5 Oct semi marathon when I will run with them


Saturday, May 18, 2013

We run for life

Tommorrow May 19th : Bucharest International Semimarathon

M(om) & D(ad) are trained and ready for the race just like  pro athelts
Music playlist set-up


 T Shirts are ready:


M&D will run their first semi-marathon and they will run to tell the world that my life is just like marathon race and that I am "running" and enjoy each and every meter of it. I belive that this way I can give power to "run" this race of life to people that think they have lost it.

We will run to support the cause of SMA Care Association that was created to help children affected by Spinal Muscular Atrophy

We will also run to support HOSPICE cause because I belive they are making a wonderful job restoring lifes devastaded by a terminal disease: 

13500 lifes already restored. Please support HOSPICE to continue this!


Saturday, February 23, 2013

Making flowers for Spring to use

Me and my mommy are helping Spring to finish its preparations. How? we are making many and as beautiful we can and on first day of March spring will use this flowers to bring happiness and strength and hope.  Look what we have done:

Do you like it? Am I a real spring thinker now :) ?

With Love,

Saturday, February 16, 2013

I have a new friend! His name: Toulouse

Just wanted to introduce you my new  friend  Toulouse. He is cute, he likes to hang out with me all day long and I like him very  much!

Thank you Gabriel for this wonderful gift!

And, Yes, I keep fighting and never give up :)

With love,

Thursday, September 13, 2012

Wednesday, May 9, 2012

2% for Alesia. THANK YOU!

This post is  for my Romanian friends that helped me last year directed 2% of their income taxes to "Asociatia Noi Orizonturi Familia" that created a special account for me for this purpose: a big


This money where and are used for my medical needs. We would like to have your support this year as well. If you did not directed your 2% already please give us a little hand by filling in and submitting the (Declaratia 230) form


Acest post este unul de multumire catre prietenii mei din Romania care m-au ajutat anul trecut redirectand 2% din impozitul anual catre "Asociatia Noi Orizonturi Familia" care a creat un cont special pentru acest scop


Acesti bani au fost donati catre mine si folositi pentru a procura consumabilele medicale necesare. Avem nevoie de ajutorul dumeavoastra si anul acesta. Daca nu ati redirectat deja cei 2% va rugam sa ne ajutati completand si depunand Declaratia 230.

Monday, February 6, 2012

Guess who came to visit me today :)

...Soooo, today mom open the window wiiide and some one came and surprised me with a visit:

Yes!  it was the Snow Man itself coming inside to warm a little because outside it too cold even for a snow man

Alesia, Mom and the Snow Man

Thursday, January 19, 2012

"I can read? yes I can read!"

My Dear Friends,

Long time no news, hope you didn't miss me to much! I have been busy learning the alphabet and, yes, now I can read and pronounce, with style :), all the letters from the alphabet. Check this out:

Is this amazing or what?

Much love!

Wednesday, September 21, 2011

M - School

We have searched for a while for schools where I can go but apparently Mommy - School is the best in town:

I already know how to read "Ana, Tata & Mama"
Countingand after so much math some sport with mr. "Morcovel"

 and then again some math ... OMG!


Wednesday, September 14, 2011

5 years + 1 day

... and this is me today, after the party

From ziuaAli2011-5Ani

AAA with a princess outfit 

5 years - I am a big girl now!

Gifts, a lot of people visiting me, then a cake and then again you know why?

Yes it was my 5th birthday! I am a big girl now!

From ziuaAli2011-5Ani

or more pictures in this album:


Thursday, April 7, 2011

Noi Orizonturi Familia - Thank you!

"Noi Orizonturi Familia" association  has been besides us for a long time now. They have been with us  3 years ago and so we could  bring Alesia back home  from hospital when we thought we will never be able to buy all the medical equipment required. This year our friends from this association created a special account to collect medical funds for Alesia obtained from 2% of annual income tax (for year 2010). The money collected into this account will be donated to us and will be used for medical necessities and to improve quality of life for Alesia. We thank to all of you that directed their 2% for Alesia already!

"Noi Orizonturi-Familia" is a not-for-profit association in Romania, whose goal is to enhance the quality of life for all members of the community. More about their projects can be found on their website:

Thank you Christian, Cristina and Noi Orizonturi Familia
Alesia & her family 

Sunday, March 13, 2011

For those who are missing me!

I know there has been so much since last post  but ... "no news is good news" when you are fighting  with SMA monster.  Still there are some news, good news:

No.1 The spring is here and this means that soon I will be able to get out of the house. I just have to see something else than movies and computer games and stories and my pink walls around me...

No. 2 Today I have 4 years + 1/2. Please check the photo collage below and notice that I am such a big girl

Alesia today =  4 + 1/2

Love y'all!
Alesia's mom and dad writing here for her until she will learn how to update this blog